Hi all my name is Sarah & i'm married to Phil we have 2 kids Charlie 8 & Shayla 5 who is disabled. She has a rare condition called Bladder Exstrophy. She has also recently been diagnosised wth Scoliosis .I am also disabled and suffer from epilepsy chat soon take care & good luck Im also finding the following site very supportive it is for families with disabled children so why not have a look too. www.parentssidebyside.com